My daughter woke up with a numb arm and died two weeks later
Alicia-Adele Axiak, an 11-year-old girl from Caerphilly, died just 13 days after being diagnosed with an aggressive brain tumor. Her mother, Amanda Axiak, is now campaigning for increased research funding for brain tumors to prevent other families from experiencing similar tragedies. Alicia's story highlights the urgent need for better awareness and funding in pediatric brain cancer research.
- ▪Alicia-Adele Axiak woke up with a numb arm and was diagnosed with diffuse midline glioma, an inoperable brain tumor, shortly thereafter.
- ▪She died on April 25, 2025, just 13 days after her diagnosis, despite being a healthy and active child.
- ▪Amanda Axiak has since founded Alicia-Adele's Angels to raise awareness and funds for brain tumor research, which has received only 1% of UK cancer research spending since 2002.
BBC News — UK publishes from United Kingdom and files mainly under news. We currently carry 652 of its stories.
Story provenance
Source · retrieval · rights · ranking — open for full record
inspect →
Story provenance
Attribution is not the same as permission. This drawer separates discovery metadata, excerpts, WeSearch-generated summaries, reuse status, and whether the publisher receives the visit. Nothing here claims a legal grant the publisher has not made.
Record
| Original publisher | BBC News — UK |
| Canonical URL | https://www.bbc.com/news/articles/cgepv107gggo?at_medium=RSS&at_campaign=rss |
| Publication time | Wed, 27 May 2026 22:00:04 GMT |
| Retrieval time | 2026-05-27T22:03:05.358Z |
| Last seen | 2026-05-27T22:03:05.358Z |
| Headline source | Publisher (no WeSearch rewrite) |
| Excerpt source | publisher body |
| Excerpt method | First ~120 words (~800 chars) of extracted publisher body, fair-use limited. |
| Summary | WeSearch · cerebras-chat (WeSearch summarizer) |
| Summary source text | contentText |
| Citation coverage | Summary is a WeSearch-generated derivative; primary citation is the original publisher URL. |
| Cluster | thwO4haI1LRk |
| Cluster logic | Grouped by semantic title/content similarity across sources within a rolling window. Same-publisher template collisions are excluded from coverage comparison. |
| Ranking reason | Story pages are not engagement-ranked. Hub feeds use recency, with optional source-diversified chronological ordering (cap consecutive stories per source). No personalized ranking. |
| Publisher visit | Yes — open original |
| Substitutes article? | No — link-out required for full text |
Rights status (four layers)
WeSearch handling by dimension
| Indexing | May the item be indexed (stored, ranked, made findable)? | Allowed |
| Snippet | May a short excerpt of the publisher's text be shown? | Allowed |
| AI summary | May WeSearch generate its own short summary of the article? | Limited |
| Retrieval / RAG | May the content be exposed for third-party retrieval-augmented generation? | Not asserted |
| Model training | May the content be used to train AI models? | Not asserted |
| Commercial reuse | May the content be reused commercially? | Not permitted |
Basis: Derived from the published RSS/Atom feed. Contact: [email protected]. Reviewed: 2026-07-24.
Opening excerpt (first ~120 words) tap to expand
My daughter woke up with a numb arm and died two weeks laterJust nowShareSaveAdd as preferred on GoogleCatriona AitkenBBC WalesAmanda AxiakAmanda Axiak says Alicia-Adele was the "perfect" daughter who "had so much empathy and love"A woman whose daughter died less than two weeks after being diagnosed with an aggressive brain tumour is campaigning to change "appalling" research funding so her death "isn't in vain".In April 2025, Alicia-Adele Axiak, 11, from Caerphilly woke up with a slightly numb arm amid a week spent playing netball, doing gymnastics and preparing for an upcoming dance competition.But her mum Amanda said their lives were "ripped apart entirely" when an MRI found diffuse midline glioma (known as DIPG) - a cancerous brain tumour - and she died just 13 days later.The Welsh…
Excerpt limited to ~120 words for fair-use compliance. The full article is at BBC News — UK.
Discussion
0 commentsMore from BBC News — UK
