The FDA's Advisory Committees Are Failing Rare Disease Patients
The FDA's Advisory Committees Are Failing Rare Disease Patients Greg Rohrbough | 9:36 PM on June 18, 2026 AP Photo/Jose Luis Magana, File The FDA has been in hot water for over a year — blocking rare disease, cancer, and other treatments from patients who are running out of time. Vinay Prasad resigned as CBER director, and Commissioner Marty Makary was fired. I celebrated along with millions of other Americans when President Donald Trump signed the landmark Right to Try legislation in his first term, giving Americans with terminal illness the right to fight for their lives and make their own treatment decisions.It was proof that Washington can still do the right thing.
- ▪The FDA's Advisory Committees Are Failing Rare Disease Patients Greg Rohrbough | 9:36 PM on June 18, 2026 AP Photo/Jose Luis Magana, File The FDA has been in hot water for over a year — blocking rare disease, cancer, and other treatments fr
- ▪Vinay Prasad resigned as CBER director, and Commissioner Marty Makary was fired.
- ▪I celebrated along with millions of other Americans when President Donald Trump signed the landmark Right to Try legislation in his first term, giving Americans with terminal illness the right to fight for their lives and make their own tre
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| Original publisher | PJ Media |
| Canonical URL | https://pjmedia.com/greg-rohrbough/2026/06/18/the-fdas-advisory-committees-are-failing-rare-disease-patients-n4954098 |
| Publication time | Thu, 18 Jun 2026 21:36:38 -0400 |
| Retrieval time | 2026-06-19T02:04:20.391Z |
| Last seen | 2026-06-19T02:04:22.796Z |
| Headline source | Publisher (no WeSearch rewrite) |
| Excerpt source | publisher body |
| Excerpt method | First ~120 words (~800 chars) of extracted publisher body, fair-use limited. |
| Summary | WeSearch · cerebras-chat (WeSearch summarizer) |
| Summary source text | contentText |
| Citation coverage | Summary is a WeSearch-generated derivative; primary citation is the original publisher URL. |
| Cluster | Lv0W0AEj46tb |
| Cluster logic | Grouped by semantic title/content similarity across sources within a rolling window. Same-publisher template collisions are excluded from coverage comparison. |
| Ranking reason | Story pages are not engagement-ranked. Hub feeds use recency, with optional source-diversified chronological ordering (cap consecutive stories per source). No personalized ranking. |
| Publisher visit | Yes — open original |
| Substitutes article? | No — link-out required for full text |
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| Indexing | May the item be indexed (stored, ranked, made findable)? | Allowed |
| Snippet | May a short excerpt of the publisher's text be shown? | Allowed |
| AI summary | May WeSearch generate its own short summary of the article? | Limited |
| Retrieval / RAG | May the content be exposed for third-party retrieval-augmented generation? | Not asserted |
| Model training | May the content be used to train AI models? | Not asserted |
| Commercial reuse | May the content be reused commercially? | Not permitted |
Basis: Derived from the published RSS/Atom feed. Contact: [email protected]. Reviewed: 2026-07-24.
Opening excerpt (first ~120 words) tap to expand
The FDA's Advisory Committees Are Failing Rare Disease Patients Greg Rohrbough | 9:36 PM on June 18, 2026 AP Photo/Jose Luis Magana, File The FDA has been in hot water for over a year — blocking rare disease, cancer, and other treatments from patients who are running out of time. That leadership is now gone. Vinay Prasad resigned as CBER director, and Commissioner Marty Makary was fired. Advertisement googletag.cmd.push(function () { googletag.display("div-gpt-300x250_3"); //googletag.pubads().refresh([gptAdSlot["div-gpt-300x250_3"]]) }); But what remains is an agency in chaos that still isn’t serving the public.I have spent my career fighting for limited government and individual liberty, from lobbying for human rights to working at the National Right to Work Committee.
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Excerpt limited to ~120 words for fair-use compliance. The full article is at PJ Media.
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